And back to bounce again
Plus ça change, plus c'est la même chose...
And thus it is a rollercoaster. Last week I was feeling fairly ordinary physically, and this week I am feeling good again. I succumbed to the pain and went back on a low dose fentanyl patch last Thursday. Saturday I was due to change it, but was in no pain so didn't bother. It's now Monday and I'm still in no pain, so I am officially back off the painkillers again! And feeeeeling good.
I did a CT last week which found some lymph nodes in my neck were up. I did a PET scan on Friday, which was a new experience! They injected me with a radiactive glucose and then put me in a little darkened room by myself while I was radioactive. I couldn't read because it would stimulate my brain and thus affect the uptake of the radioactive dye. But they gave me a valium to relax the muscles and I quite happily slept for the hour (I can sleep in a MRI machine; a bed in a dark room with valium in my system is very much a doddle). I then went to lie in a machine for half an hour and it was all very straightforward. No results from it yet.
The main result from all these tests? It's time to go back to Sydney to talk to my doctor there. He is the only one at the moment with the overall knowledge of my case and the cancer expertise. My doctor here in Brisbane is fantastic but he is a haemato-oncologist and my cancer is outside his sphere of expertise. He can give me chemo and refer me on to specialists, but this is not his field. I can and will get a new specialist here in Brisbane but for the moment it is just easier to go to Sydney.
So the good news is I will be in Sydney this weekend! We are arriving on Thursday so I can go to Life Force that evening - and yes, we does indeed mean that TNM is coming too, and will be available for grilling. We will be holding court at the usual place - cocktails at the Swissotel on Friday night. The appointment with the doctor is at 3.30, so hoping to be back by drinks time on Friday. I am trying to call everyone to invite you all, but if I don't, please consider this your invitation to come and have a drink on Friday night!
So I am well again, feeling very good, and hoping to see you all on Friday...
God bless,
Jess xoxox
And thus it is a rollercoaster. Last week I was feeling fairly ordinary physically, and this week I am feeling good again. I succumbed to the pain and went back on a low dose fentanyl patch last Thursday. Saturday I was due to change it, but was in no pain so didn't bother. It's now Monday and I'm still in no pain, so I am officially back off the painkillers again! And feeeeeling good.
I did a CT last week which found some lymph nodes in my neck were up. I did a PET scan on Friday, which was a new experience! They injected me with a radiactive glucose and then put me in a little darkened room by myself while I was radioactive. I couldn't read because it would stimulate my brain and thus affect the uptake of the radioactive dye. But they gave me a valium to relax the muscles and I quite happily slept for the hour (I can sleep in a MRI machine; a bed in a dark room with valium in my system is very much a doddle). I then went to lie in a machine for half an hour and it was all very straightforward. No results from it yet.
The main result from all these tests? It's time to go back to Sydney to talk to my doctor there. He is the only one at the moment with the overall knowledge of my case and the cancer expertise. My doctor here in Brisbane is fantastic but he is a haemato-oncologist and my cancer is outside his sphere of expertise. He can give me chemo and refer me on to specialists, but this is not his field. I can and will get a new specialist here in Brisbane but for the moment it is just easier to go to Sydney.
So the good news is I will be in Sydney this weekend! We are arriving on Thursday so I can go to Life Force that evening - and yes, we does indeed mean that TNM is coming too, and will be available for grilling. We will be holding court at the usual place - cocktails at the Swissotel on Friday night. The appointment with the doctor is at 3.30, so hoping to be back by drinks time on Friday. I am trying to call everyone to invite you all, but if I don't, please consider this your invitation to come and have a drink on Friday night!
So I am well again, feeling very good, and hoping to see you all on Friday...
God bless,
Jess xoxox
posted by Jessie at 10:00 am
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