Thursday, September 20, 2007

Crazy chaos, happy memories

Crazy, crazy, crazy couple of weeks. Crazy joyful couple of weeks.

Missing the Harley rally for the surgery meant that I had recovered enough from the surgery to fly up to Mackay for the following weekend, taking my new family with me. It was wonderful to have them in Mackay - my old family and my new family together.

On Saturday it was Dave's citizenship ceremony. In the morning we decided that the most useful thing we could do was keep out of everyone's way, so went for a drive around Mackay to see the sights. I never actually realised how beautiful Mackay is until recently. Certainly never did while I lived there!

Dave's citizenship was in the afternoon, and it was beautiful. The garden was magnificent - they've worked so hard on it - and it was great to see all of my Mackay friends and relatives, not to mention all the English rels! The mayor came out to conduct the ceremony and the weather was perfect. Now my step-daddy is an Aussie :)

On Sunday my next door neighbours organised four Harleys and four big Harley riders. It was simply one of the best experiences of my life, and a memory that I will treasure forever. Mama, Chelsea (my cousin) and Denise (Dave's sister - my aunt) and I went for a magnificent two hour ride - out to Lambert's Beach lookout, to the harbour and the marina, and then up to the Eimeo pub, where the rest of the crowd met us for a drink. The weather was absolutely glorious, we had the wind in our faces, the sun was shining, and we were a big enough group to take over the road and have everyone watch us as we went by. Fred even took me 'traffic bumping' over the bridge - scary, but oh so fun!

I kept telling everyone how happy I was, and it was true. I think I said it quite a bit - making Mama wonder if I was protesting too much, or trying to convince myself, or just taking too many painkillers - but the truth is it was one of the happiest weekends of my life.

On Monday was Rhona's wedding, which was just beautiful. It was really nice to go down to Black's Beach for a couple of nights and just spend some good, quality time with all of my English rels and have the chance to get to know them a little better.

The following weekend was a big one too - on Friday night Amy threw me a hen's night. All my girlfriends got together, we went out to dinner and then back to Amy's for an evening of girly things - nails and massages and gossip. It was great - some varied marriage advice though!

On Sunday I did something I've been thinking about for awhile - I got baptised. I was baptised as a child, but I wanted a 'believer's baptism' as well. I was in my church, surrounded by my church family, my family and my friends, and I gave my life to God with great joy. Here is the testimony I shared with everyone beforehand:

"I like to think of life as a journey. You get into a boat and travel down the great river of life. Sometimes you encounter rapids, and it can get dangerous, difficult and precarious. Sometimes you go through great stretches of beautiful and happy scenery.

And as you journey, some people get into your boat. Some get out again. Some get in for a long time, some only get in for a little while. Some help you row, some are dead weights.

Sometimes it feels like you can be all alone. Or at least I do. Sometimes I felt like I was all alone in my little boat, being carried along powerless by the current.

The thing I have learnt is that I am never alone. Even if I am sitting all alone in my little boat, being carried along by the current, there is always a glorious presence with me. God is always there. He is there as the boat. He is there as the scenery. He is there as the current, directing the boat. And Christ is always, always sitting with me.

And once I learnt that lesson, life became so much easier, so much freer. Now that I have learnt to trust – to completely trust – the current, or God’s plan for my life, I don’t need to worry every time something goes wrong, or is difficult, or I don’t understand. Just because I do not understand why something happens, doesn’t mean it doesn’t happen for a very good reason. God is the Master Potter, and His plans are flawless. And the freedom of trusting in His great plan means that my life is so free and so so happy.

And even when things are difficult, I am never alone. Christ is always there, by my side, suffering through the same things I do. And He loves me so much He was prepared to die for me. And His great sacrifice takes away the great fear in my life – that of dying. Because dying is just like reaching the mouth of the river. Everyone will get out of my boat and we will have a big party on the beach – there will be balloons, fairy bread and a jumpy castle. And it will be a wonderful party. And then I will get back into my boat, alone, and everyone will stand on the beach and wave madly as my boat heads off to the horizon (with me in the hammock on the front deck with a cocktail). And as my boat slips over the horizon, no one on the beach will be able to see me anymore. But I won’t be gone – in fact, as I cross the horizon, I will catch a glimpse of the shore. And as I get closer, I will see the thousands of people on the beach waiting for me, all waving madly, with an even bigger jumpy castle and an even bigger party. With Christ waiting for me, to spend eternity with me. And while I will be sad to leave this world, the prospect of spending eternity in paradise with my God and Saviour is such a happy one, and one that I am looking forward to so much.

There wasn’t really a point at which I accepted Christ into my life. I learnt a lot about Him during my university years and in the past couple of years I have just grown more and more aware of His presence in my life. And so we get to today, where Christ’s presence in my life – His centralness to my life – is so important to who I am. I am so grateful that God revealed Himself to me, that He shows me His never-ending love and continues to do so everyday."

What a happy couple of weeks.

This week has been a bit chaotic - Mama came down on Saturday to help me and just to be with me and keep me sane, and I'm so grateful she did. She has just had a couple of enormous weeks herself, and is exhausted, but pulling out her last reserves to get through this week too. I'm so very appreciative - this was definitely a week I wanted to spend with my Mama.

And I think the chaos is now over for me - I have successfully delegated all the details that are left and am looking forward to spending tomorrow with my friends, just relaxing. And then on Saturday I will be married to the man I love.

This is Jessica Anne Disteldorf, signing out.

Friday, September 07, 2007

The pandamonic joy that is my life

So where are we? Last Friday, just going into hospital for this straightforward procedure, right? Okay...

The surgeon went in and found that the cancerous plaque had also invaded the pancreas, not just the gall bladder. So instead of just poking a hole to let the gall sludge and bile and stuff drain away, he put a stent in - a little tube of some very expensive metal. (He says I now carry about three and a half grand in my chest.)

And the five percent chance the surgery will actually cause pancreatitis? Well, I hit it, of course. Pancreatitis. So I was in hospital until Wednesday night, in the end. It does mean that I made the right call about not going to Mackay for the Harley weekend, cause if I had the surgery on Monday, I wouldn't have been able to make it up to Mackay for Dave's citizenship on the 7th.

I spent the first twenty-four hours sick as an absolute dog - they gave me pethidine. I don't like pethidine much, it makes me sick. Give me morphine or fentanyl - fentanyl is my drug of choice. But what would I know - I'm just the patient right? The face that I've been doing this for five years now is irrelevant. ANYWAY, it took over twenty four hours for them to listen to me and get me off pethidine and onto morphine.

Most of the rest of the hospital stay is all blurry - morphine might not make me as sick, but it definitely makes me groggy and stoned and stupid. Very hazy for most of the stay. Jason came every day to spend time with me, Em came on the weekend and Dad Beata and Sophie came every night.

Towards the end of my stay I had finally got the morphine levels right, and then a new nurse came on and started giving me a higher dose. Unfortunately, cause I was so groggy I didn't work it out for most of the day.

Food was crap.

On Wednesday I realised that I hadn't had a blood test that morning (vampires come in at 5am each morning to stick pins in you. One morning it took two vampires and four attempts. One morning it felt like the vampire had just stabbed me with a potato peeler. They definitely vary in skill.) and that if I didn't have blood results for the day, there was no way that the surgeon would let me go home. So I upwardly managed, made the nurses call the surgeon to order a blood test, and got the vampires up. (He'd just forgotten to order it the day before. If I hadn't made it happen I would have had to spend another day.) He came in to see me that evening and said "We need to keep you in for another few days." I said "You ARE joking." He said "Yes, I am." So I went home Wednesday night :)

Which brings me to the next bit of pandemonic joy. I met with James Morton, my main oncologist here in Brisbane before all the surgery started. I also met with a new oncologist, Paul Mainwarring. Dr Mainwarring is working on a new approach that selectively targets the blood supply of tumours and cutting blood flow. He is going to go back to my original biopsy samples from five years ago and run some tests, and I might be a good canditate for some of the new treatments he is working on. So that is very exciting. I'll meet with him again in a couple of weeks to see what he's found.

On a slightly less positive note, the face that the cancer has infiltrated my organs and is causing problems like this pancreatitis and gall sludge is not a good sign. James strongly recommended to me that we bring the wedding forward. NOT because I'm not going to be here in November, but simply because he knows how important it is to me, and it is something I should do while I KNOW I'm healthy enough. He doesn't want to see me married in hospital. He just can't guarantee what sort of health I'll be in.

Another reason for us to bring the wedding forward is if I do start some experimental therapies with Dr Mainwarring, I don't want to start anything new or potentially disruptive to my life until after I'm married.

So... we've brought the wedding forward.

To Saturday 22nd September.

Yes, that's in two weeks.

So for the past week and a half, we have all been frantically wedding planning. And pretty much everything is now in place... or on track. It's been a completely crazy week - planning a wedding in three weeks is just crazy. But we are so happy and so excited - our magical day is now very close! And so much seems to be falling into place and just flowing. (Although a lot of stuff is being pushed into place by Amy, I think - not just falling!) It all feels just right and just perfect - this is going to be such a special day.

And in a couple of hours Jason, Emily and I are flying to Mackay for Dave's citizenship tomorrow. I will stay until Wednesday for Rhona's wedding and Tim's birthday on Tuesday. I am so happy that I'm well enough for this weekend - I haven't been up to Mackay in so long, and I'm really looking forward to taking up my new family to spend time with my existing one! And it will be wonderful to see all the English rellies too!

So as you can tell, my cup runneth over. It is just pouring over everywhere, like Niagra Falls. I am so very happy right now.

Thank you for sharing this journey with me.

May God bless you as richly as he does me.

With great great great love, in great joy,

Jessie xoxoxo